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Cystic fibrosis (CF) feels a little different for everyone, but everyone experiences progression of CF over time, whether they feel it or not. Progression can occur when the thick mucus building up throughout the body causes inflammation and scarring in many different organs, leading to permanent damage. This damage is often present before it can even be detected by tests, so it's important to understand how progression impacts many different parts of the body over time.

Maureen
Living with CF

Cycle of Lung Damage

Repeated pulmonary exacerbations cause lung damage

Beginning early, the buildup of thick, sticky mucus in the lungs results in a cycle of infection, inflammation, and more mucus buildup. Pulmonary exacerbations are often a key part of this cycle. This is especially serious because a pulmonary exacerbation means more than just a hospital stay or an extra round of antibiotics. It may cause permanent lung damage that advances disease progression.

Bronchiectasis causes loss of lung function

Chronic inflammation and infection often lead to an extensive and progressive condition called bronchiectasis, which eventually affects virtually all people with CF. Bronchiectasis is a permanent reshaping of the airways that causes them to become loose and scarred. It can make it harder to clear mucus from the lungs and for the airways to move air in and out as a person breathes. As it worsens, the lungs become more damaged, leading to a loss of lung function.

It’s important to promptly treat pulmonary exacerbations to prevent and slow down the progression of bronchiectasis. If left untreated, the cycle of infection and inflammation can result in a permanent loss of lung function.

Watch how CF affects the lungs over time

In CF, permanent lung damage may occur even before it can be detected by lung function tests.

Starting from a young age, people with CF may experience a lung function decline of 1 to 3 percentage points each year on average.

A change in lung function is not always felt

Part of what makes this decline so serious is that some people don’t always feel the change. So someone may lose a lot of lung function before they begin to feel like something is wrong.

Disease progression is universal

CF is different for everyone. But all cases of CF progress over time. Taking a proactive approach to managing CF is the first step toward managing disease.

It’s never too early to have a conversation with a healthcare provider about potential lung damage.

Having high lung function means that CF is not progressing.

Here's the truth:Lung function tests don't always detect early lung damage, so lung damage may be present even when lung function is high.

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As someone with CF grows up, the same mucus issues that caused digestive problems in childhood may have caused scarring in different digestive organs. This scarring can result in the development of other conditions.

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Helpful Websites

Your kidneys perform several critical functions. They clean your blood and support important bodily functions. When your kidneys cannot perform these functions, hemodialysis may be required. The following resources may help you understand infections that hemodialysis patients can get and ways to prevent these infections.

How Hemodialysis Vascular Access Works

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helps move blood from the patient to the hemodialysis machine. There are three kinds of access: fistulas, grafts and central line catheters. Central line catheters are associated with increased infections rates compared to grafts or fistulas. A fistula generally lasts longer and has fewer problems such as infections and clotting.

Fistula: Graft: Central Line Catheter:

Hemodialysis and Infections

Among hemodialysis patients, infections are the second leading cause of death. Hemodialysis patients are more at risk of infections such as Staphylococcus aureus and other bloodstream infections and viral hepatitis. Be informed of the risks associated with hemodialysis and learn how you can keep yourself safe.

Take Action to Prevent Infections


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This two-sided guide outlines 6 tips to prevent dialysis infections for patients with central line catheters and 6 tips to prevent dialysis infections for patients with fistulas or grafts. Patients can download this resource in both Spanish and English.

Order to order this patient resource.

The End Stage Renal Disease (ESRD) website can help you understand dialysis and answer your questions.

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/ Adult Partial Hospitalization Program

Adult Partial Hospitalization Program

Adult Partial Hospitalization Program

Blue Mountain Health System’s Acute Partial Hospitalization Program (PHP) for adults is a non-residential intensive, and multidisciplinary program serving adults 18 years and older with mental health disorders. The program is a distinctive level of care providing extension clinical services on an individualized basis. It is an alternative to hospitalization for clients not requiring 24-hour supervision but still requiring a high degree of therapeutic support.

The primary goal of the Acute Partial Hospitalization Program is to increase or maintain the level of patient functioning, so as to return the patient to a less restrictive level of care in as short a time as possible. The treatment team hopes to provide the patients with tools necessary to cope with their living, learning, and, when appropriate, working environments and to prevent the recurrence of the symptoms which necessitated hospitalization.

In order to achieve its goals and objectives the Acute Partial Hospitalization Programs philosophy is based on a Recovery Model of treatment. Recovery emphasizes that while individuals with mental illness may not be able to have full control over their symptoms, they can have full control over their lives. Recovery asserts that persons with psychiatric disabilities can achieve not only effective stability and social rehabilitation, but transcend limits imposed by both mental illness and social barriers to achieve their highest goals.

Objectives

Comprehensive Services

Our experienced and compassionate interdisciplinary team offers a holistic approach to treating the complex problems of mental illness. The professional team includes a Psychiatrist, Nurse Practitioner, Licensed Clinical Social Worker, Licensed Social Worker, Behavioral Therapist, Art Music Therapist and Behavioral Health Registered Nurse who are all trained to assist patients in their self-discovery, learning and recovery process. The Center offers:

Admissions

All patients referred to the Center are assessed by a mental health professional to determine the need for treatment. Patient must meet the following criteria before consideration for admission:

Referrals

The Blue Mountain Health System Acute Partial Hospitalization Program accepts referrals and inquiries from healthcare and community providers, individuals and family members 24 hours a day. All assessments are confidential. For patient referrals or more information, please call (610) 852-4061.

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St Luke's Gnaden Huetten Campus and St. Luke's Palmerton Campus provide a wide array of quality, health care services.

St Luke's Palmerton Campus

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Influence Church is among the best non-denominational churches in Orange County; our Anaheim Christian church includes a men’s and women’s ministry, young adult ministry, live online Christian church services and Christian podcasts. And talent worship leaders Michael Ketterer, Whitney Medina, Melody Noel, Matt Gilman.

Service Times

Sunday 9:00 and 10:40 am

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Influence Church 8163 East Kaiser Blvd.Anaheim Hills, CA 92808

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